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Asperger's Syndrome: Offering Families Practical Help and Faith-Drive Hope
Michele Howe of New Growth Press speaks with CCEF author Dr. Michael Emlet
on the subject of Asperger's Syndrome. Counselors and interested adults
will discover much about this disorder and how it relates to a believer's
responsibility, before God and in community with others.
Can you define Asperger's Syndrome and compare and contrast it to autism?
Asperger's Syndrome (AS) or Asperger's Disorder is placed in the
same family as autism, in what the DSM (Diagnostic and Statistical
Manual of Mental Disorders) terms as a "pervasive developmental
disorder." While AS is grouped within the same family as autism,
there is some debate about the ways AS is similar to and different
from autism. There are no diagnostic tests (like blood tests or MRIs)
to clinically diagnose this disorder, so counselors rely on
structured interviews with the child, his parents, and his teachers
to assess whether or not an individual has AS. There are questionnaires
that help in that assessment, as well.
What indicators identify someone with this syndrome?
Asperger's Syndrome is a neuro-developmental disorder.
Austrian pediatrician Hans Asperger, who studied
children with this disorder in 1944 and whose work
was translated into English in 1991, describes a
"constellation of symptoms" for those with AS.
In 1994, the American Psychiatric Association included
AS in the DSM and cited two common elements experienced
by AS children. First is the area of social difficulties.
Persons with AS have trouble interpreting and cuing
in on the verbal and nonverbal communication of others.
These children do not pick up on the subtle, nonverbal
signals involved in communication, so they have
trouble decoding the feelings and responses of
people around them. Even though they themselves
"have good expressive language ability…they struggle
to use these abilities appropriately in conversation."
Second, AS children commonly display restricted or
repetitive behaviors or interests. They will focus
in on a singular topic, either by collecting it or
by amassing an encyclopedia-like knowledge of the
specific area. This specific focal point may alter
as they age (and, on a positive note, it can become a
career specialty). Within these criteria, researchers
connect AS to a baseline deficit in what is known as
"theory of mind" (ToM), which is "the innate capacity
to understand that other people can have desires, ideas,
and feelings different from our own." There are often
other struggles associated with AS. AS kids must overcome
clumsiness in their motor skills. They have difficulty
following multi-step directions and filtering out
background noise and other competing stimuli
As a counselor, have you found one treatment
plan to be effective for most children with this problem?
Every person is unique, so each person must be
approached differently. However, there are patterns
or a common rubric that counselors can use for every
individual. Each one of us stands before God with an
active heart, so every person with AS stands before
God in the same way a neuro-typical ("normal") person
does. However, we must realize that those with AS also
have a body that affects their behaviors. Counselors must
be aware of the brain-based differences the AS person has.
This understanding helps me to be wary of calling something
sinful when it may not be for the AS sufferer. Still, the
AS child needs gospel-centered, biblical counseling in the
same way neuro-typical persons do.
Do you or should you hold AS children to the same set
of expectations you have for non-AS children, especially
in response to bad behaviors? What are the differences
between average children and the child with Asperger's
in regard to internal restraints?
Let me answer that question with a question.
Would we have the same expectation for a four-year-old
as we would for a seven-year-old? No, our expectation
will vary according to each child's maturity. Typically,
a child with AS is about three years behind his
chronological peers in social and emotional maturity.
AS children tend to struggle more with restraint and
this knowledge is going to affect my approach as a counselor.
I want to recognize that "can't" is very different from
"won't" when it comes to an AS child's behavior. I don't
want to assume that a child "won't" when AS brings the
behavior much closer to "can't." It's not that we don't
seek change in an AS child. We continue to offer a gospel
oriented "can-do" approach. But there are times when we
must realize that, very possibly, the AS child simply can't
do better right now.
How might the spiritual responsibility of someone with
Asperger's be different from that of someone who does
not have this disorder?
Our baseline is that every person is an image bearer
of God. We are all responders and therefore responsible
before God to worship, honor, and obey him and to love
others. The first and second commandments apply to all
of us. However, there is another way to view this question.
Think of the command to practice hospitality. How does
this work out in an extrovert's life versus an introvert's
life? Hospitality will look very different in these two cases,
yet both can be living in obedience to God, given the "gifts"
they have been given by the Father. Another example is in the
parable of the talents in Matthew 25. Jesus tells us to be
faithful until he returns, yet the "level' of obedience expected
for a five-talent person is different from that for the one given
two talents. As we consider this metaphor for those with AS, we
see that the admonition to be faithful will yield different
responses of obedience in someone with AS compared to the
neuro-typical person.
What about an AS child's perception of parental instructions?
What do parents need to do differently to have their child
hear and carry out directions?
Parents need to learn to say less. They need to mean exactly
what they say, being aware that their child hears literal
words and phrases and cannot discern unspoken or assumed
requests or directives. It also helps parents to realize
how hard it is for their AS child to suddenly change gears.
AS children struggle with inflexibility; it takes longer
for them to process incoming data. This is compounded by
their difficulty in filtering out background noises that
others (without AS) would have no problem ignoring. For the
AS child, a small, incidental noise can sound like a jackhammer.
It makes it hard to focus on the parental instruction. Given
this fact, the timing and location of any conversation are just
as important as the content and tone of the words themselves.
What are some effective ways to communicate with the Asperger's child?
In addition to what has already been said, parents should
carefully consider what they say and how they say it.
Communication should be clear and concrete. Parents
should avoid using figures of speech. When speaking
to the AS child, be ready to pause frequently to allow
the child time for processing and for feedback. Parents
need not be afraid of the silences; their child needs this
extra time to consider what has been said. Parents should
also be careful with their facial expressions, remembering
that the AS child has trouble interpreting non-verbal cues.
The child may wrongly feel that the parent is scowling and
angry with them when the parent is simply concentrating. AS
children misread facial expressions and often can't compute
them. They "hear" a harsh, loud, angry tone of voice when
perhaps the parent is simply speaking firmly or with conviction.
Also, the neuro-typical person places a premium on eye contact.
This, too, is hard for AS children. They might look away because
it is painful for them to maintain extended eye contact. This is
where parents can teach social skills to their AS children, teaching
them that people want to be looked at when speaking or when being spoken to.
Parents can also prepare their child to receive physical gestures like hugs.
This is something AS children may find hard to do if not prepared for them.
How do you instruct family members to deal with
and understand annoying behaviors or strange responses?
A basic truth to remember is that what we might consider socially
odd is not necessarily malicious or sinful - it is just different.
Parents need to educate family members on what is typical behavior
for people with this struggle. Explaining these differences won't
erase the annoying features, but it will raise the compassion level
in the rest of the family. For example, siblings can be prepared
for the bluntly honest comments that will often come from their AS
sibling. This education helps immensely. I recommend reading AS
resources as a family so that everyone is fully aware of how life
will be with their AS family member. Parents also need to remind
their other children that God has made us all different. Every one
of us has our own unique strengths and weaknesses. We are all the
same in our struggle to overcome personal weaknesses, so we cannot
view the AS child's weaknesses as moral deficiencies necessarily.
We must recognize that the AS person sees the world differently
than we do and that's okay.
Is there any way to support an AS child's social immaturity
to ease the transition into adulthood?
There is a much greater awareness of AS today than there
was in the past. While today's AS kids still fall
outside the bell curve, this new awareness means that
more diagnoses are made earlier on, which means that
children are getting help earlier on. The earlier AS
is recognized, the earlier social skills training can begin.
Parents with older AS children might offer social skills
training at home. They can suggest possible social scenarios
their teens will face and help them work through them. After
high school, the AS child might live at home for the first
year, which would allow him to move more slowly into his new
college environment. Living with a mature, caring roommate
who can serve as a mentor is another good option.
Interestingly, the master/apprentice program (rather than a
classroom full of students) has been shown to work well for
those with AS. This individualized training might be preferable
for them. As more information about AS becomes available, more
adults are recognizing themselves. This brings them great hope,
because they can now work harder and more specifically on their
areas of struggle since they now have a fuller understanding
of the AS condition.
What resources do you recommend to counselors and family members?
- The Complete Guide to Asperger's Syndrome by Tony Attwood
- Comic Strip Conversations by Carol Gray
- The OASIS Guide to Asperger Syndrome by Patricia Bashe, Barbara Kirby, Simon Baron-Cohen and Tony Attwood
- The Curious Incident of the Dog in the Night-Time by Mark Haddon
- Asperger Syndrome by Michael Emlet
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